Welcome to Joubert Syndrome in the UK     We also welcome Related Cerebellar Disorders

 

           Joubert Syndrome in the UK

        We also welcome Related Cerebellar Disorders      

 www.jsuk.org 

 

 

 

 

Welcome to JSUK an organisation

for the parents and carers of children affected by Joubert Syndrome

a rare genetic disorder.

                                          

           Faith and Jake Douthwaite

    

 

 
 
 
 
 
 
 
 
 
Please explore the site by clicking on the buttons to the side.
 
You can learn more about us and our aims in - About JSUK.
 
Newly Diagnosed offers a starting point for Parents and Carers.
 
Read personal stories and view our children's photo's in the Gallery.
 
We have some useful information put together by parents and
various professionals in our Hints and Tips section.
  
Noticeboard - Please check for updates and any upcoming events.
 
Check out whats  here ~ Newsletter ~ Fundraising
 
Join us in the Parent's Room for continued support, this is a private 
room to exchange information around our children's development. 

 

      
                    Check out our Guest Book   Visitors Posts 
            

                

 

 

 

 

 

Check out our Visitor locations on the ClustrMap          

         Total visitors since 1 Nov 2007 - 2 Nov 2008 : 2,139
                                                                           

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